Monday, July 31, 2017

Hadlie Hoglund

Hadlie Violet Hoglund
March 28, 2011 - March 29, 2015
Hadlie was born on March 28, 2011. She had an older brother named Kade. Hadlie loved her family and was known for being a happy and sweet little girl. She liked the color purple, princesses, Hello Kitty, beef jerky, and cupcakes. Shortly after Hadlie's third birthday, her family began noticing that she was limping. They waited to see if she would stop limping on her own, but when she kept limping, they took her to get x-rays.

X-rays showed nothing abnormal, but Hadlie looked like she was losing her balance too. She also lost some mobility in her left hand. This was the same side that she was limping on. When she tried to catch a ball, she couldn't even close her hand. Her parents now knew that whatever was wrong was serious and they suspected that it was neurological. They took Hadlie to the hospital but were unable to meet with a pediatrician. They had to wait for an appointment.

Two days later, Hadlie's parents brought her back to the hospital and insist that she have a CT scan. They knew something was very wrong. Hadlie was given the CT scan which revealed she had a tumor in her brain. They were flown that day to another hospital to have an MRI. They waited for the results from the MRI. Hadlie's parents thought that the worst case scenario would be that she would have to have surgery to remove the tumor and give her chemotherapy. 

Unfortunately, Hadlie's parents were wrong and Hadlie's condition was much more serious. She was diagnosed with diffuse intrinsic pontine glioma, often just called DIPG. DIPG has no cure, but there are treatments that help lessen symptoms to improve the child's quality of life for a short period of time until the symptoms return and ultimately take the child's life. Because of the location of the tumor, it cannot be surgically remove. No child has survived DIPG long-term.

Hadlie's family decided to live the remainder of her life to the fullest and vowed not to waste a single second with Hadlie. Hadlie got to go see the Red Sox and go to Disneyland twice. She got to go horseback riding and go to two luaus in Maui. These were just a few things on Hadlie's bucket list. The last item on her bucket list was turning four years old. She accomplished this the day before she passed away surrounded by love from her adoring family.



Sources:
Defeat DIPG

4 comments:

  1. Thanks once again! Can you please add these two: https://www.defeatdipg.org/meet-the-kids/azalea-harper/ and https://www.defeatdipg.org/meet-the-kids/natasha/ (For the passing date, Natasha Gould died August 4, 2016.)

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    1. Definitely. Please give me about a week or less to add them both. Thank you for helping me honor these beautiful children.

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    2. Your welcome and thanks! Let's wait for a week!

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    3. I did Azalea's. Expect Natasha's soon.

      http://theangelprojectstories.blogspot.com/2017/08/azalea-harper.html

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